alexis williams, scotch lake, cape breton
In 2004, seven-month-old Alexis (Lexie) Williams suddenly had a grand mal seizure. She was referred to the IWK, where she was diagnosed with Epilepsy. Lexie’s seizures – known as complex partial seizures – are always different. Sometimes a blank stare will come over her face and she becomes non-responsive, while at other times, she may become aggressive.
Lexie’s Epilepsy continues to be followed by the IWK. She has been monitored in the EEG (electroencephalography) room – this is where as many as 29 wires are attached to a patient’s head in order to read brain activity. The patient is then videotaped over a long period of time in order to better understand the cause of their seizures.
“Being at the IWK is like being at home. The staff is so accommodating and helpful.”
Cameron Fiander, Hampton, New Brunswick
Cameron Fiander is a nine-year-old boy with a happy demeanour. Cameron has Angelman Syndrome – a neuro- genetic disorder characterized by intellectual and developmental delay, sleep disturbance, seizures and, almost ironically, frequent laughter or smiling.
The Fianders say the care Cameron receives at the IWK is critical to his well-being. “It is so comforting to walk through the doors and to be surrounded by a team of professionals who understands Cameron’s challenges.”
More recently, Cameron’s seizures worsened, and at first it seemed only medication would help control them. But the medication also meant Cameron was less alert. That’s when the Fianders discussed trying a ketogenic diet for Cameron with his care team at the IWK. A ketogenic diet is a high-fat, adequate-protein, low-carbohydrate diet that forces the body to burn fats rather than carbohydrates. Since beginning the diet Cameron’s visible seizures have been under control and the IWK continues to monitor Cameron’s progress.